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Auction to benefit Lahaina toddler afflicted with rare disease

March 29, 2012
The Maui Weekly

Lahaina News - When their son Trek began losing weight a few months ago, Jarrett and Chelsea Ingram took him to the hospital. There, they found out that their toddler, who is almost 2, has a rare genetic disease called Neimann Pick Type A.

"There is no treatment or cure," said Trek's aunt Amanda Somerville, "Life expectancy is 18 months to 3 years. We are all heartbroken."

The Ingrams had been looking forward to travelling the world together, but had to postpone their trip to Thailand, which was planned for last February.

"They are truly embracing life together and making every moment count," said Sommerville.

Fundraisers have been scheduled to help the family pay for living expenses and medical bills. The first event is a silent auction, set for Saturday, March 31, at Lulu's in Lahaina Cannery Mall, from 9 to 11 a.m.

For more information, visit www.babytrekatlas.com, www.oursonnylife.com or www.jarrettingram.com.

 
 
 

 

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